Thank you for visiting TEAM FRANKIE STRONG'S fundraising page! We are so glad you are here.
As all you know our beautiful, fearless, CRAZY heart warrior, Miss Frankie Rose, was born on November 7, 2019 with Hypoplastic Left Heart Syndrome, a complex, severe Congenital Heart Defect (CHD). Frankie has already undergone her Norwood operation on November 11, 2019 and her Bidirectional Glenn procedure on March 30, 2020 at The Children's Hospital of Philadelphia. Although its been a bumpy road, Frankie is doing fantastic and continues to thrive every day. She has taught us all so much and has proven the true meaning of strength. She is the light of our lives and we couldn't be prouder to be her parents.
This year we will be participating in the 2020 Virtual CHD Walk for Hope on Sunday, September 27, 2020. CHD Coalition's mission is to support families impacted by a congenital heart defect. The annual CHD Coalition Awareness Walk brings families together to celebrate and honor our heart warriors. We would love for you to us walk with us this year. Since this is a Virtual Walk, TEAM FRANKIE STRONG will meet at Allaire State Park at 11:00am to walk together. If you are unable to join us, please consider donating to the CHD Coalition to help further their mission. No donation is too small! Congenital heart defects are the #1 birth defect worldwide and is the leading cause of all infant deaths in the United States. Nearly 1 in 100 babies are born with a CHD. Research is greatly underfunded but with your help we can bring much needed awareness and fund groundbreaking research to help improve and extend the lives of those born with a Congenital Heart Defect.
We thank you for joining us. We take comfort in the strength that you give us through your love and support.
WHEN: SUNDAY, SEPTEMBER 27, 2020
WHERE: ALLAIRE STATE PARK, 4265 ATLANTIC AVE., WALL TOWNSHIP, NJ 07727