The worst moment of my life has been watching a group of doctors and nurses sit my sister and brother in law down and tell them that their new born baby, my nephew, would need emergency open heart surgery at 4 days old. I stood there feeling like an out of body experience. I watched my sister hold on to her chair and tell me she was going to pass out, while my brother in law buried his head in his hands. I tried to listen to the terms the doctors were trying to explain to them, i knew both of them were not capable of listening and then I suddenly blurted out, "is he going to die?" I didn't expect it to come out but it did and the doctor looked up at me and said, "lets get him to CHOP now." We all drove up, prayed, cried, sat in silence. It was the worst week of my life. My duty was night time duty so my sister and Andy could spend some time with Jack, and yet Ben wasn't alone. As I would sit there watching this tiny baby fight for his life, I tried to picture him running around the yard someday and playing with his brother. I prayed more than I have ever prayed before.
Today, I watch him run around with his brother. He is fearless, he is resilient, he is unstoppable, he is a handful, and most of all he is a WARRIOR.
Please help donate to Congenital Heart Defects. 1 in 100 children are diagnosed with one, even my own daughter was born with one that thankfully fixed itself on its own. Its a lot more common than people think. However, Ben's type was 1 in 10,000. We need more research and more information and funding to help these little kids live the lives they were meant to live.
We would love people to walk on team Big Ben on September 30th! Let me know if you want to be part of our team!