Thank you for taking the time to visit our teams fundraising page!
We are walking on Sunday, October 1st to support the effort of the Congenital Heart Defect Coalition and their quest to help those affected by CHD. We would love for you to walk besides us and/or consider making a donation (no amount is too small) to support our efforts. We hope that these efforts will help provide treatment and find a cure for CHD.
Zoe's Story: Our fierce, strong, determined, amazing Zoe was born on May 31, 2011 with Hypoplastic Left Heart Syndrome. We learned that she had a severe congenital heart defect during our 20 week ultrasound. The words, "Your baby has a severe congenital heart defect" are among the worst words any parent will hear in their lifetime. There are difficult days in the journey of a CHD parent but there are also so many amazing days.
Zoe has successfully journeyed through 3 open heart surgeries (one at 6 days old, one at 3 1/2 months old, and one at 3 1/2 years old) and is living life to the fullest. Zoe is attending summer camp now and participates in all activities at camp. She loves rock climbing, zip lining, soccer, playing in the woods, and swimming. In the winter she loves skiing and going fast so that she can keep up with her older sister. In the fall Zoe will be entering 1st grade and at this point she has had no developmental or learning delays. Zoe gets high marks in school and is one of the two kids in her Kindgergarten class that received a mark of Exceeds Expectations in gym. This is with 1/2 a heart!!! Zoe is competitive and would rather win and get scrapes and bruises then lose. :)
We don't know what the future will hold, what challenges Zoe will face, what other issues will be caused by her Fontan circulation but I am confident that the future is bright and am so very encouraged by the research that is taking place to make it possible for our Heart Heros live long beautiful lives.